Not Dead Yet!

by MommyKnows · 29 comments

in Family, General

So far … I am being told I have transverse myelitis. Go ahead and look it up on Wikipedia and please take note that I DODO have control of my bladder and my bowel — I repeat I DO have control of my bowel and my bladder.

I have the idiopathic sort (it means the idiots can’t figure out why … heeheehee).

It’s gotten a little bit worse over the past week. Hoping it doesn’t progress any further. The lesion is in my spinal cord at the c4 vertabrae, therefore, potentially everything below my chin could be paralyzed. Due to the fact that it came on quite slowly the doctors don’t think it will get much worse.

I skied today. I sucked! Due to a slight weakness on the left side of my body (thanks myelitis) I found it difficult. I was fun to get out and spend time with the kids. I figure I should get out and enjoy my legs while they still work.

Tomorrow I rest!

This is such a fun blog, eh? Come back and check on the status of my partial paralysis tomorrow.

MK xo
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{ 28 comments… read them below or add one }

1 Tara R April 19, 2008 at 21:26

um… I am so impressed that you managed to ski. Wow.

Scary.

Tara R’s last blog post..The birds have returned

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2 Hannah April 19, 2008 at 21:46

Wow, that sounds quite serious! I am impressed that you even TRIED to ski. Look after yourself, okay?!

Hannah’s last blog post..Made me smile

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3 Cocoa April 19, 2008 at 22:25

Glad that you finally have a diagnosis. Sad that it could potentially lead to paralysis. And I can’t believe you tried to ski!

Cocoa’s last blog post..The Demise of the TV

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4 Michelle April 19, 2008 at 22:30

Oh, wow, I can’t believe it. I’m sending positive thoughts and good vibes your way. You keep that great attitude of yours, and take care of yourself.

Michelle’s last blog post..baby turns three

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5 Noreen April 19, 2008 at 23:17

Take it easy!!

Noreen’s last blog post..Huggies CleanTeam: Dirty Kids vs. Bath Time

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6 Susy-Q April 20, 2008 at 05:35

I am so sorry to hear about what you are going through. This must be frightening–for you and your family–yet you manage to keep a wonderful sense of humour. You are in my thoughts and prayers.

Susy-Q’s last blog post..Mother Nature, bring it on!

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7 Carey April 20, 2008 at 05:47

Your in my prayers. Praying that if this is what it is, that you are treated correctly with complete success.
Glad you had fun skiing.

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8 Jenny M April 20, 2008 at 06:00

Hugs for continued healing!!

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9 naomi April 20, 2008 at 07:33

Your attitude is great, but I’m hoping you recover full use of everything ASAP…hope you caught it early.

naomi’s last blog post..Scootababy baby carrier

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10 Erin G April 20, 2008 at 08:03

Yikes…good for you for going out anyway. I’d probably be too scared.
I usually refer to the Mayo Clinic website fro anything health related…so here’s a link to their TM page:
http://www.mayoclinic.com/health/transverse-myelitis/DS00854

Let me know if you need anything. :)

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11 Jenn B April 20, 2008 at 10:28

“and please take note that I DO … DO have control of my bladder and my bowel—- I repeat I DO have control of my bowel and my bladder.”

i know it’s not a “laughing matter”…but…well…(giggle). glad you’re in good(ish?) spirits about it.

Jenn B’s last blog post..Geek Humor

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12 Cindi April 20, 2008 at 12:41

Hi, I have been thinking about you. It is good to hear from you today!
I hope you do not progress any further. Is there something that can be
done with the lesion and the illness? God bless…..Cindi

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13 Ann April 20, 2008 at 13:49

We’re all thinking about you! Keep up the good spirits, that’s already half the battle!

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14 Kait April 21, 2008 at 06:21

Heavens! I’ll be thinking about you!

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15 Deb April 21, 2008 at 14:56

Yikes! I hope things turn around (for the better, of course) soon for you! I’ll be thinking of you!

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16 Erin April 22, 2008 at 12:14

Your in my prayers, Kim. This sounds pretty serious, and it seems that you are maintaining as positive an attitude as possible…thinkin’ about you, take care of yourself, and keep us posted

Erin’s last blog post..Catchin’ Up

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17 katie bowen April 22, 2008 at 18:52

ah! so i stop checkin your blog for a week or so and THIS is what happens! send u a big hug! we’re having wierd health things going on too! all the best…

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18 Ok, Where Was I? April 23, 2008 at 10:21

Is it wrong to say that you’re funny on a post like this? I mean, I did chuckle. But really, I hope things go well.
Sarah

Ok, Where Was I?’s last blog post..Bossy Was Here

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19 artsweet April 23, 2008 at 17:02

SCARY! Oh my goodness, Kim, this sounds absolutely terrifying. I am amazed that you are as chin up as you are – please know that our thoughts are with you and your family.

artsweet’s last blog post..Does Anyone Have “Clean Little Secrets”?

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20 Crabmommy April 23, 2008 at 20:01

Kim!
OMG! I have’t been to MK for a while now and visit to find…this, instead of my usual sassy friend and her sassy swaggy giveaways!
I wish you a speedier-than-speed-of-light recovery and am so sorry to hear you are not on top form.
I looke dit up. It does not sound like fun.
Sending best, fanciest, most intensely focused get-wells-soon vibes
your pal, C xxx

Crabmommy’s last blog post..FREE STUFF: Swagilicious Designer Swimwear Giveaway from Land’s End

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21 sara April 24, 2008 at 13:14

wow you are going through a lot. I hope that your recovery is very fast. Take care!

sara’s last blog post..Shopping

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22 Noreen April 25, 2008 at 20:56

I hope you are doing well, I have been thinking of you

Noreen’s last blog post..Huggies CleanTeam: Dirty Kids vs. Bath Time

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23 Carey April 26, 2008 at 14:08

Just checking in on you. Hope you are feeling better!

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24 katie bowen April 28, 2008 at 13:36

since there isn’t any new news i’m a little worried about you dearie! know that you’ve been in my prayers and i’m hoping you’re doing better.

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25 lace April 29, 2008 at 08:28

I hope all is well.

lace’s last blog post..Ice Cream!

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26 Kim April 30, 2008 at 07:34

We are still thinking of you!

Kim’s last blog post..It appears as though Luci won!

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27 Nick May 1, 2008 at 07:42

Hi Kim,

Maybe you remember me, maybe not. I ordered clothing for my son from you 2 years ago and was stunned with your customer support when my package was last in the mail and you send me all clothing again, for free!

My family and I wish you to beat your illness and recover quickly. I know there is a lot of chances you will.

With love from Russia,
Nikolai and family

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28 *andie* May 1, 2008 at 12:56

Holala!!
I did not come here since so long… I found you are so courageous (is it the right word in english???). I am not sure I got everything but I understand enough to know that it is serious.
A thousand of thought for you and your family.

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